Teen beauty spot drinkers are ramblers, not rebels
- Dave Burrows
Shropshire cancer sufferer in treatment funding row
Tuesday 8th March 2011, 6:35PM GMT.
A Shropshire cancer sufferer today hit out at health bosses he claims are refusing to stump up cash for treatment which could save his life.
Simon Coates, of Loppington, near Wem, suffers from carcinoid tumour syndrome and needs £30,000 to have radio targeted therapy to prolong his life.
But the 61-year-old has hit out at health bosses after failed attempts to secure the funding from the Shropshire County Primary Care Trust (PCT) and other sources.
Mr Coates fears he may be forced to find the cash himself by remortgaging his house if he can’t secure the funding from elsewhere.
He discovered he had a tumour in his abdomen about 12 months ago which has now spread to his liver and lungs.
Mr Coates said today: “I am very unimpressed with the PCT to say the least.
“This treatment is desperately needed to prolong my life and I might have to re-mortgage my house to be able to pay for it. At 61, this is not what I want to be doing.
“I am taking medication, but this doesn’t seem to be working so I have been recommended radio targeted therapy.
“It will cost £30,000, take place over nine months and involve three separate treatments.”
Dr Julie Davies, of Shropshire County PCT, said: “The PCT doesn’t comment in detail about individual cases in order to respect patients’ confidentiality.
“But we very much understand how important the decisions are for patients and their families when a particular non-routine treatment has been requested.
“We therefore look very closely at the clinical aspects of each individual case, and the clinical effectiveness of the treatment.
“Cases can also be referred to the West Midlands cancer drugs committee for them to consider the clinical grounds for it, and sometimes both the PCT and then the regional committee have to reach the difficult conclusion that there is not enough clinical evidence on the effectiveness of that treatment in order to support the request in that instance.”
By James Pugh
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This sounds like the usual post code apartheid system that we have these days in the NHS. I’m sure that, if he lived in Powys, he’d be ok.
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April 3rd 2010 pre-election David Cameron pledges to “provide cancer drugs” which turned out to be hollow words.
http://www.timesonline.co.uk/tol/news/politics/election_2010/article7086683.ece
http://www.telegraph.co.uk/news/politics/conservative/7550194/David-Cameron-pledge-on-cancer-drugs-marks-a-dividing-line-on-health.html
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This article does not note the type of exact cancer the patient he is suffering?
The cancer is not “carcinoid tumor syndrome” but instead may be carcinoid or NET tumor with the primary from an organ normally, whihc is very important (example, Steve Jobs has Pancreatic NET tumor).
The “syndrome” are effects of the tumor when it secrets chemicals into the blood stream, it is then called “carcinoid syndrome” which he will need expensive somatostatin analog therapy to control.
The radio peptide therapy I assume is PRRT with either Y90 or Lu177? Is this correct? Is this therapy approved in UK for NETs/carcinoid tumor? If not, why not?
Its the most effective therapy for receptor positive tumor. Why not approve it NICE and give people years of quality life? They are paying for the monthly injection, right? This is normally $4K monthly, every 28 days and its paid without a pause. PRRT has a 75% of stopping the need for this drug as it stops the excretion of the chemical!
UK folks, demand that patients get access to effective therapy!
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One last thing, I am sorrow but the patient and if it is PRRT will “not save his life”,,,,there is nothing available systemically and in his advanced state, it will be difficult just too control it.
Studies, many studies, have shown he may get somewhere between 17 months to 50 months of progression free interval from the start of a 4 therapy procedure every 3 months. The tumors will progress and then he will have to decide the right course but
IT IS NOT A CURE SIR…SORRY….
I SUFFER FROM SAME THING AND GOING THRU THERAPY IN EUROPE. ITS THE BEST THERAPY AVAILABLE AND LEARN TO LIVE THE “EXTRA TIME” BUT DON’T HAVE MI EXPECTATIONS…AS IN MOST OF CANCER THERAPIES, THERE ARE LITTLE TO NO CURES ONCE ADVANCED!
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